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[hondablondie]

Thank you. Have you done any research on the best place to live with this disease? I heard cold is bad and so is too hot. I keep hearing that Phoenix is supposed to be awesome because of the dry weather. What area do you live in? I am in NC and the cold wet weather is killing me! I am hoping Spring is close by
So, how do you cope with yours daily? I know what you mean about cleaning and then being down for days. Mine has gotten to the point that my muscles have started ripping and tearing the blood vessels by my skin. I feel the worst about my girls and not being able to be active with them like I was. My 9 yr old has the hardest time accepting it. Do you have children? If so what are their ages?
Well, I am getting tired so I will stop for now. Hope to hear from you again!
Hondablondie

[Me123]

Hello,
Yes, I've heard dry warm climates are best.. but I was in Arizona for a few days and didn't feel any different. Maybe if I was there longer I might have.
I'm in Florida. I'm probaby NOT in the best place for my condition. The winter was very cold and the summers are wet. It's finally warming up here which feels a little better. But I love it here. So far, I'm going to stick it out and not move.
Every day for me is different. If its really cold outside, I usually end up taking a bath with Epson salt to ease the aches. I do stretching. When I feel good I try to do something fun or get housework done, but it's always followed by a few days of pain. After I get through work, it's on the couch with a movie. lol
No, I don't have any kids, but have been thinking seriously about it. However, I imagine the pregnancy would be hard on me and I'm afraid I wouldn't be able to keep up with my child and I would be exhausted.. so I haven't decided yet.
Sounds like you are really having a tough time. I'm very sorry to hear that. Have you been to a rheumatologist?