Fibromyalgia Support Forum

New to Forum, introduction

New to Forum, introduction

Postby Erikac27 on Sat Nov 14, 2009 2:10 pm

Hi my name is Erika and I am 27. I started having tremendous pain in my early 20's and have been back and forth to doctors over the years. I have repeatedly been told that its definitely not arthritis, and that there is nothing they can do about my pain and fatigue. The doctors always say I am too young to have either firo or arthritis and so refuse to do any further followups or begin any kind of treatments. I am now in the most pain I have ever been in and some days I am exhausted from the moment i wake up and there are many times my back, legs, arms, and hands hurt so badly I can hardly manage to use them.

Has anyone here had this problem with doctors, and was there anything you were able to do to keep your pain and fatigue under control until you were diagnosed and helped?
Erikac27
 
Posts: 1
Joined: Sat Nov 14, 2009 1:57 pm

Re: New to Forum, introduction

Postby kivlanmaron on Thu Nov 19, 2009 11:58 pm

Hi Ericka, (hope I spelled that right!)

I'm really surprised that you were told you are "too young" to have fibro. I run a forum at fibrofreelife.com and many of our female members are in their twenties, and were diagnosed some time ago. I'm so sorry you're having such trouble with the doctors you've been dealing with. I know more about holistic and natural approaches to FM, because that's what my sister did and that's what has really worked for her. I'm not sure if you're open to that but if you are, please let me know. I will try and point you in the right direction.

Here's to a pain free day,

Kivlan
www.fibrofreelife.com
fibro.support@live.com
kivlanmaron
 
Posts: 2
Joined: Thu Nov 12, 2009 6:55 pm

Re: New to Forum, introduction

Postby barneyda on Sun Jan 17, 2010 7:09 am

My daughter and son have a lot of symptoms that I have and I also had a lot of pain problems when I was young. It is being diagnosed in children now. You should go to a Rhuematologist and see if you can get the proper diagnosis. Good luck and God bless.
barneyda
 
Posts: 1
Joined: Sun Jan 17, 2010 6:51 am

Re: New to Forum, introduction

Postby fibromyalgiacia on Fri Feb 12, 2010 7:25 am

I am new to Fibromyalgia Support. org . Yet, I have had FM for years, since spinal injuries and arm nerve injuries from work caused events. The spinal trauma was treated both conservatively and with surgery. However, the NSAID is significant someway to the onset of fibromyalgia that followed injury and surgery. At the time I went through the same hell that many of you must have gone through. The AMA allegedly having met in D.C. chose to let people think this condition called Fibromyalgia was all psychological, as they had determined that if they stated the truth that fibromyalgia is a disease it would over-welm the social Security system with disabled people. This left many people to suffer alone, with under-caring, unconcerned doctors. A doctor at Mayo Clinic went against the trend, but told me not to tell. He stated that my condition was Fibromyalgia and they he knew it was caused by the traumatic spinal cord injury, but he stated because he was here from outside the nation he had to go along with Mayo Clinic and the AMA. Since those days some major medical clinics allegely have changed (as red faced as they have been since) their position on Fibromyalgia and have slowly progressed toward truth.
They now say CENTRAL SENSATIZATION is the theory to go with. Of course, most who have fibromyalgia know that these people who print CS theory need to be sued. Those who have fibromyalgia have a higher pain tolerance then most who do not have it. It comes from repeated sufferings during flare-ups. Most had higher pain tolerances to begin with. I would recommend more law suits for malpractice and class action lawsuits. It might be a wake up call that people, patients should not be thrown away by the system over dollars.
The reason so few lawsuits have been filed by FM patients is due to most needing to avoid stress, due to it's being a trigger in FM.
Perhaps a class action lawsuit against each major offending physician, clinic, think group might be the key to reversal and to stopping hte abuse of FM patients.
fibromyalgiacia
 
Posts: 2
Joined: Fri Feb 12, 2010 6:43 am

Re: New to Forum, introduction

Postby fibromyalgiacia on Fri Feb 12, 2010 7:32 am

I think the doctors may be abusive to you. Perhaps you should find a doctor that has a history of proper care support for FM patients. However, ruling out other illnesses is important. Fibromyalgia, as you know can begin at any age.
Some doctors are simply abusive to women patients with Fibromyalgia. You will find that to be well documented as you read some of the fibromyalgia accounts by people who came down with the condition in the eighties.


kivlanmaron wrote:Hi Ericka, (hope I spelled that right!)

I'm really surprised that you were told you are "too young" to have fibro. I run a forum at fibrofreelife.com and many of our female members are in their twenties, and were diagnosed some time ago. I'm so sorry you're having such trouble with the doctors you've been dealing with. I know more about holistic and natural approaches to FM, because that's what my sister did and that's what has really worked for her. I'm not sure if you're open to that but if you are, please let me know. I will try and point you in the right direction.

Here's to a pain free day,

Kivlan
http://www.fibrofreelife.com
fibro.support@live.com
fibromyalgiacia
 
Posts: 2
Joined: Fri Feb 12, 2010 6:43 am


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